Clinical Trial: Remote Home Assessment of Patients With Amyotrophic Lateral Sclerosis

Study Status: RECRUITING
Recruit Status: RECRUITING
Study Type: OBSERVATIONAL



Official Title: Remote Home Assessment of Patients With Amyotrophic Lateral Sclerosis

Brief Summary:

The goal of this observational study is the develop new ways of remotely monitoring the health and symptoms of people living with amyotrophic lateral sclerosis from within their homes.
The main questions it aims to answer are:

  • Can we integrate a new muscle monitoring device into Imperial College London's home monitoring platform?
  • Can we investigate and understand the relationship between muscle activity and measure of patient behaviour (e.g., patient movement), physiology (e.g., pulse/blood pressure variation) and sleep quality from the home?
  • Can we establish a home-based multimodal biomarker that tracks the neurodegenerative process in ALS? Participants will have passive internet-of-things sensors and internet-enabled medical devices installed in their homes for one year.
    Some sensors will record automatically without any interaction from the participants, but some will require participants to engage with daily (e.g., blood pressure monitor) on their own or with the help of a study partner.

Where possible, researchers will compare the collected data to other neurodegenerative diseases and healthy controls to understand differences over time.