Status | Study |
Recruiting |
Study Name: Oral Iron for Erythropoietic Protoporphyrias Condition: Erythropoietic Protoporphyria EPP Date: 2016-11-29 Interventions: Drug: Oral Iron for one year Other Name: Ferrous sul |
Active, not recruiting |
Study Name: Mitoferrin-1 Expression in Erythropoietic Protoporphyria (Porphyria Rare Disease Clinical Research Consortium (RDCRC)) Condition: Erythropoietic Protoporphyria (EPP) Date: 2013-06-17 |
Recruiting |
Study Name: Erythropoietic Protoporphyrias: Studies of the Natural History, Genotype-Phenotype Correlations, and Psychosocial Impact Condition: Erythropoietic Protoporphyria EPP Date: 2012-09-14 |
Recruiting |
Study Name: Phase III Confirmatory Study in Erythropoietic Protoporphyria Condition: Erythropoietic Protoporphyria Date: 2012-05-22 Interventions: Drug: Afamelanotide One 16mg s |
Terminated |
Study Name: Effect of Isoniazid on Protoporphyrin Levels in Erythropoietic Protoporphyria Condition: Erythropoietic Protoporphyria (EPP) X Linked Erythropoietic Date: 2012-03-05 Interventions: Drug: Isoniazid Isoniazid 5 mg/Kg up to 300 mg per day. Oral tablets. 2 months. |
Recruiting |
Study Name: Longitudinal Study of the Porphyrias Condition: Acute Porphyrias Cutaneous Porphyrias Date: 2012-02-13 |
Completed |
Study Name: Sorbent Therapy of the Cutaneous Porphyrias Condition: Erythropoietic Protoporphyria Date: 2011-08-23 Interventions: Drug: Colestipol 2 grams morning and bedtime for 90 days. |
Completed |
Study Name: Phase II Confirmatory Study in Erythropoietic Protoporphyria (EPP) Condition: Erythropoietic Protoporphyria Date: 2010-03-30 Interventions: Drug: Afamelanotide One 16mg s |
Completed |
Study Name: Phase III Confirmatory Study in Erythropoietic Protoporphyria (EPP) Condition: Erythropoietic Protoporphyria Date: 2009-09-17 Interventions: Drug: Afamelanotide One 16mg s |
Completed |
Study Name: Does Exercise and Heat Increase the Lightsensibility in Patients With Erythropoietic Protoporphyria Condition: Erythropoietic Protoporphyria Date: 2005-09-12 Interventions: Behavioral: exercise Behavioral: heat |