Resources
Children's Craniofacial Association
13140 Coit Road
Suite 517
Dallas, TX 75240
USA
Tel: (214)570-9099
Fax: (214)570-8811
Tel: (800)535-3643
Email: [email protected]
Internet: http://www.ccakids.com
March of Dimes Birth Defects Foundation
1275 Mamaroneck Avenue
White Plains, NY 10605
Tel: (914)997-4488
Fax: (914)997-4763
Tel: (888)663-4637
Email: [email protected]
Internet: http://www.marchofdimes.com
FACES: The National Craniofacial Association
PO Box 11082
Chattanooga, TN 37401
Tel: (423)266-1632
Fax: (423)267-3124
Tel: (800)332-2373
Email: [email protected]
Internet: http://www.faces-cranio.org
Chromosome Disorder Outreach, Inc.
P.O. Box 724
Boca Raton, FL 33429-0724
USA
Tel: (561)395-4252
Fax: (561)395-4252
Email: [email protected]
Internet: http://www.chromodisorder.org/CDO/
American Speech-Language-Hearing Association
2200 Research Boulevard
Rockville, MD 20850-3289
United States
Tel: (301)296-5700
Fax: (301)296-8580
Tel: (800)638-8255
Email: [email protected]
Internet: http://www.asha.org
NIH/National Heart, Lung and Blood Institute
P.O. Box 30105
Bethesda, MD 20892-0105
Tel: (301)592-8573
Fax: (301)251-1223
Email: [email protected]
Internet: http://www.nhlbi.nih.gov/
NIH/National Institute on Deafness and Other Communication Disorders
31 Center Drive, MSC 2320
Communication Avenue
Bethesda, MD 20892-3456
Tel: (301)402-0900
Fax: (301)907-8830
Tel: (800)241-1044
TDD: (800)241-1105
Email: [email protected]
Internet: http://www.nidcd.nih.gov
UNIQUE - Rare Chromosome Disorder Support Group
P.O. Box 2189
Caterham
Surrey, CR3 5GN
United Kingdom
Tel: 4401883330766
Fax: 4401883330766
Email: [email protected]
Internet: http://www.rarechromo.org
Craniofacial Foundation of America
975 East Third Street
Chattanooga, TN 37403
Tel: (423)778-9176
Fax: (423)778-8172
Tel: (800)418-3223
Email: [email protected]
Internet: http://www.craniofacialfoundation.org
11q Research and Resource Group
5155 Shotwell Street
Woodstock, GA 30188
USA
Tel: (404)428-8440
Email: [email protected]
Internet: http://www.11qusa.org
European Chromosome 11q Network
Sparkasse Pforzheim D
Wiernsheim, 85421
Germany
Tel: 31317423345
Fax: 31317426980
Email: [email protected]
Internet: http://www.chromosome11.eu/
Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Internet: http://rarediseases.info.nih.gov/GARD/
Source: http://www.webmd.com