Resources
March of Dimes Birth Defects Foundation
1275 Mamaroneck Avenue
White Plains, NY 10605
Tel: (914)997-4488
Fax: (914)997-4763
Tel: (888)663-4637
Email: [email protected]
Internet: http://www.marchofdimes.com
The Arc
1825 K Street NW, Suite 1200
Washington, DC 20006
Tel: (202)534-3700
Fax: (202)534-3731
Tel: (800)433-5255
TDD: (817)277-0553
Email: [email protected]
Internet: http://www.thearc.org
American Childhood Cancer Organization
10920 Connecticut Ave
Suite A
Kensington, MD 20895
Tel: (301)962-3520
Fax: (301)962-3521
Tel: (800)366-2223
Email: [email protected]
Internet: http://www.candlelighters.org
National Cancer Institute Physician Data Query
Office of Communications and Education
Public Inquiries Office
6116 Executive Blvd
Suite 300
Bethesda, MD 20892-8322
Tel: (800)422-6237
Email: [email protected]
Internet: http://www.cancer.gov/cancertopics/pdq/cancerdatabase
National Cancer Institute
6116 Executive Blvd Suite 300
Bethesda, MD 20892-8322
USA
Tel: (301)435-3848
Tel: (800)422-6237
TDD: (800)332-8615
Email: [email protected]
Internet: http://www.cancer.gov
Neuroblastoma Children's Cancer Society
P.O. Box 957672
Hoffman Estates, IL 60195
USA
Tel: (847)605-1245
Fax: (847)605-0705
Tel: (800)532-5162
Email: [email protected]
Internet: http://www.neuroblastomacancer.org
Childhood Cancer Canada Foundation
21 St. Clair Avenue East, Suite 801
Toronto
Ontario, M4T 1L9
Canada
Tel: 4164896440
Fax: 4164899812
Tel: 8003631062
Email: [email protected]
Internet: http://www.childhoodcancer.ca
OncoLink: The University of Pennsylvania Cancer Center Resource
3400 Spruce Street
2 Donner
Philadelphia, PA 19104-4283
USA
Tel: (215)349-8895
Fax: (215)349-5445
Email: [email protected]
Internet: http://www.oncolink.upenn.edu
CureSearch for Children's Cancer
4600 East West Highway, Suite 600
Bethesda, MD 20814-3457
USA
Tel: (626)447-1674
Fax: (626)447-6359
Tel: (800)458-6223
Email: [email protected]
Internet: http://www.curesearch.org
NIH/National Institute of Child Health and Human Development
31 Center Dr
Building 31, Room 2A32
MSC2425
Bethesda, MD 20892
Fax: (866)760-5947
Tel: (800)370-2943
TDD: (888)320-6942
Email: [email protected]
Internet: http://www.nichd.nih.gov/
Beckwith-Wiedemann Family Forum
105 Yehudah St. Apt 2
Modi'in, 71700
Israel
Tel: 01197289714544
Email: [email protected]
Internet: http://www.beckwith-wiedemann.info/
Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Internet: http://rarediseases.info.nih.gov/GARD/
Beckwith-Wiedemann Children's Foundation
9031 Cascadia Ave
Everett, WA 98208
Tel: (425)338-4610
Fax: (425)357-8575
Email: [email protected]
Internet: http://www.beckwith-wiedemannsyndrome.org
Hemihypertrophy Support
4581 Magnolia Dr.
Suffolk, VA 23435
Tel: (757)615-3686
Email: [email protected]
Internet: http://www.hemisupport.com
Source: http://www.webmd.com