Status | Study |
Recruiting |
Study Name: Efficacy of Computerized Cognitive Training and Stimulant Medication in Neurofibromatosis Type 1 Condition: Neurofibromatosis Type 1 Date: 2016-05-25 Interventions: Other: CogmedRM Cogmed RM is a |
Enrolling by invitation |
Study Name: Analysis of Plasma for Diagnosis and Follow-up of Neurofibromatosis Type 1 Condition: Neurofibromatosis 1 Date: 2016-01-15 Interventions: Other: Blood sample 10 mL venous blood sample for analysis of plasma |
Recruiting |
Study Name: Hypotonia and Neurofibromatosis Type 1 (NF1) Glioma Condition: Neurofibromatosis Type 1 Date: 2015-10-20 Interventions: Device: Magnetic resonance imaging |
Active, not recruiting |
Study Name: Resiliency Training for Adolescent Neurofibromatosis Patients Via Videoconferencing With Skype Condition: Neurofibromatoses Date: 2015-02-25 Interventions: Behavioral: Stress Management Group 1 |
Completed |
Study Name: Everolimus for Treatment of Disfiguring Cutaneous Lesions in Neurofibromatosis1 CRAD001CUS232T Condition: Neurofibromatosis 1 Date: 2014-12-12 Interventions: Drug: Everolimus Everyone in the study will receive Everolimus at a starting dose of 10 mg daily and wil |
Completed |
Study Name: Internet Support Group for Parents of a Child With Neurofibromatosis Type 1 Condition: Neurofibromatosis 1 Date: 2014-05-31 |
Completed |
Study Name: Neuropsychological Impairment and Quality of Life in Neurofibromatosis Type 1 Condition: Neurofibromatosis Type 1 Date: 2013-04-24 Interventions: Other: Neuropsychological examination and quality of life measures |
Completed |
Study Name: Phase II Study of Gleevec/Imatinib Mesylate (STI-571, NCS 716051) in Neurofibromatosis (NF1) Patients With Plexiform Neurofibromas Condition: Neurofibromatosis Date: 2012-08-22 Interventions: Drug: Gleevec Gleevec® will be dosed orally 440 mg/m^2/day (max 800 mg/day) for pediatric subjects |
Completed |
Study Name: Acceptance and Commitment Therapy for Adolescents and Young Adults With Neurofibromatosis and Chronic Pain Condition: Neurofibromatosis Date: 2012-06-29 Interventions: Behavioral: ACT Workshop The ACT workshops will consist of a patient program and a corresponding parent |
Completed |
Study Name: How Neurofibromatosis Type 1 (NF1) Affects Schoolwork and Self-Esteem Condition: Neurofibromatosis Type 1 Date: 2012-06-21 |