Resources
Scleroderma Research Foundation
220 Montgomery Street
Suite 1411
San Francisco, CA 94104
USA
Tel: (415)834-9444
Fax: (415)834-9177
Tel: (800)441-2873
Email: [email protected]
Internet: http://www.srfcure.org/home
Scleroderma Foundation
300 Rosewood Drive, Suite 105
Danvers, MA 01923
USA
Tel: (978)463-5843
Fax: (978)463-5809
Tel: (800)722-4673
Email: [email protected]
Internet: http://www.scleroderma.org
American Autoimmune Related Diseases Association, Inc.
22100 Gratiot Ave.
Eastpointe, MI 48021
Tel: (586)776-3900
Fax: (586)776-3903
Tel: (800)598-4668
Email: [email protected]
Internet: http://www.aarda.org/
National Marfan Foundation
22 Manhasset Avenue
Port Washington, NY 11050
Tel: (516)883-8712
Fax: (516)883-8040
Tel: (800)862-7326
Email: [email protected]
Internet: http://www.marfan.org
Lupus Foundation of America, Inc.
2000 L Street NW
Suite 710
Washington, DC 20036
USA
Tel: (202)349-1155
Fax: (202)349-1156
Tel: (800)558-0121
Email: [email protected]
Internet: http://www.lupus.org
Sjogren's Syndrome Foundation, Inc.
6707 Democracy Blvd
Suite 325
Bethesda, MD 20817
Tel: (301)530-4420
Fax: (301)530-4415
Tel: (800)475-6473
Email: [email protected]
Internet: http://www.sjogrens.org
Arthritis Foundation
1330 West Peachtree Street, Suite 100
Atlanta, GA 30309
USA
Tel: (404)872-7100
Tel: (800)283-7800
Email: [email protected]
Internet: http://www.arthritis.org
NIH/National Institute of Arthritis and Musculoskeletal and Skin Diseases
Information Clearinghouse
One AMS Circle
Bethesda, MD 20892-3675
USA
Tel: (301)495-4484
Fax: (301)718-6366
Tel: (877)226-4267
TDD: (301)565-2966
Email: [email protected]
Internet: http://www.niams.nih.gov/
Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Internet: http://rarediseases.info.nih.gov/GARD/
Madisons Foundation
PO Box 241956
Los Angeles, CA 90024
Tel: (310)264-0826
Fax: (310)264-4766
Email: [email protected]
Internet: http://www.madisonsfoundation.org
Autoimmune Information Network, Inc.
PO Box 4121
Brick, NJ 08723
Fax: (732)543-7285
Email: [email protected]
International Scleroderma Network
7455 France Ave So #266
Edina, MN 55435-4702
Tel: (952)583-5735
Tel: (800)564-7099
Email: [email protected]
Internet: http://www.sclero.org
European Society for Immunodeficiencies
1-3 rue de Chantepoulet
Geneva, CH 1211
Switzerland
Tel: 410229080484
Fax: 41229069140
Email: [email protected]
Internet: http://www.esid.org
AutoImmunity Community
Email: [email protected]
Internet: http://www.autoimmunitycommunity.org
Cogan's Contact Network
PO Box 145
Freehold, NJ 07728-0145
USA
Tel: (732)409-1031
Internet: http://www.coganssyndrome.info/
Source: http://www.webmd.com
