Resources
American Syringomyelia & Chiari Alliance Project
P.O. Box 1586
Longview, TX 75606-1586
Tel: (903)236-7079
Fax: (903)757-7456
Tel: (800)272-7282
Email: [email protected]
Internet: http://www.asap.org
Canadian Syringomyelia Network
69 Penny Crescent
Markham
Ontario, L3P 5X7
Canada
Tel: 9054718278
Fax: 9059444844
Email: [email protected]
Internet: http://www.csn.ca/
World Arnold Chiari Malformation Association
31 Newtown Woods Road
Newtown Square, PA 19073
Tel: (610)353-4737
Email: [email protected]
Internet: http://www.wacma.com
Christopher & Dana Reeve Foundation
636 Morris Turnpike, Suite 3A
Short Hills, NJ 07078
USA
Tel: (973)379-2690
Fax: (973)912-9433
Tel: (800)225-0292
Email: [email protected]
Internet: http://www.christopherreeve.org
Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Internet: http://rarediseases.info.nih.gov/GARD/
Madisons Foundation
PO Box 241956
Los Angeles, CA 90024
Tel: (310)264-0826
Fax: (310)264-4766
Email: [email protected]
Internet: http://www.madisonsfoundation.org
Christopher S. Burton Syringomyelia Foundation, Inc.
P.O. Box 100335
Fort Lauderdale, FL 33310-0335
Tel: (954)727-5137
Fax: (954)636-2409
Email: [email protected]
Internet: http://www.thesmfoundation.org
Conquer Chiari
320 Osprey Court
Wexford, PA 15090
USA
Tel: (724)940-0116
Fax: (724)940-0172
Email: [email protected]
Internet: http://www.conquerchiari.org
Chiari & Syringomyelia Foundation
29 Crest Loop
Melville, NY 11747
Tel: (718)966-2593
Internet: http://www.CSFinfo.org
Source: http://www.webmd.com
