Disease: Pfeiffer-Weber-Christian syndrome

Resources

NIH/National Institute of Arthritis and Musculoskeletal and Skin Diseases
Information Clearinghouse
One AMS Circle
Bethesda, MD 20892-3675
USA
Tel: (301)495-4484
Fax: (301)718-6366
Tel: (877)226-4267
TDD: (301)565-2966
Email: [email protected]
Internet: http://www.niams.nih.gov/

NIH/National Institute of Allergy and Infectious Diseases
Office of Communications and Government Relations
6610 Rockledge Drive, MSC 6612
Bethesda, MD 20892-6612
Tel: (301)496-5717
Fax: (301)402-3573
Tel: (866)284-4107
TDD: (800)877-8339
Email: [email protected]
Internet: http://www.niaid.nih.gov/

Erythema Nodosum Yahoo Support Group
Internet: http://health.groups.yahoo.com/group/erythema_nodosum_Group/

Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Internet: http://rarediseases.info.nih.gov/GARD/

Madisons Foundation
PO Box 241956
Los Angeles, CA 90024
Tel: (310)264-0826
Fax: (310)264-4766
Email: [email protected]
Internet: http://www.madisonsfoundation.org

Alpha-1 Advocacy Alliance
PO Box 202
Wolftown, VA 22748
Tel: (540)948-6777
Fax: (540)948-6763
Tel: (866)367-2122
Email: [email protected]
Internet: http://www.alpha1advocacy.org

Source: http://www.webmd.com

Disorder Subdivisions

  • None

Source: http://www.webmd.com

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