Resources
Tuberous Sclerosis Alliance
801 Roeder Road
Suite 750
Silver Spring, MD 20910
US
Tel: 3015629890
Fax: 3015629870
Tel: 8002256872
Email: [email protected]
Internet: http://www.tsalliance.org
March of Dimes Birth Defects Foundation
1275 Mamaroneck Avenue
White Plains, NY 10605
Tel: (914)997-4488
Fax: (914)997-4763
Tel: (888)663-4637
Email: [email protected]
Internet: http://www.marchofdimes.com
The Arc
1825 K Street NW, Suite 1200
Washington, DC 20006
Tel: (202)534-3700
Fax: (202)534-3731
Tel: (800)433-5255
TDD: (817)277-0553
Email: [email protected]
Internet: http://www.thearc.org
Epilepsy Foundation
8301 Professional Place
Landover, MD 20785-7223
Tel: (866)330-2718
Fax: (877)687-4878
Tel: (800)332-1000
TDD: (800)332-2070
Email: [email protected]
Internet: http://www.epilepsyfoundation.org
NIH/National Institute of Neurological Disorders and Stroke
P.O. Box 5801
Bethesda, MD 20824
Tel: (301)496-5751
Fax: (301)402-2186
Tel: (800)352-9424
TDD: (301)468-5981
Internet: http://www.ninds.nih.gov/
Tuberous Sclerosis Association
Toad Hall
White Rose Lane
Woking
Surrey, GU22 7LB
United Kingdom
Tel: 4401214456970
Email: [email protected]
Internet: http://www.tuberous-sclerosis.org
Children's Brain Tumor Foundation
274 Madison Avenue, Suite 1004
New York, NY 10016
United States
Tel: (212)448-1595
Fax: (212)448-1022
Tel: (866)228-4673
Email: [email protected]
Internet: http://www.cbtf.org
Brain Tumor Foundation for Children, Inc.
6065 Roswell Road Suite 505
Atlanta, GA 30328-4015
USA
Tel: (404)252-4107
Fax: (404)252-4108
Email: [email protected]
Internet: http://www.braintumorkids.org
Tuberous Sclerosis Canada Sclerose Tubereuse
508 12th Street
Dunmore
Alberta, T1B 0K4
Canada
Tel: 8882232410
Email: [email protected]
Internet: http://www.tscanada.ca
Rare Cancer Alliance
1649 North Pacana Way
Green Valley, AZ 85614
USA
Internet: http://www.rare-cancer.org
Rothberg Institute For Childhood Diseases
530 Whitfield Street
Guilford, CT 06437
USA
Tel: (203)458-7100
Fax: (203)458-2514
Email: [email protected]
Internet: http://www.childhooddiseases.org
Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Internet: http://rarediseases.info.nih.gov/GARD/
Madisons Foundation
PO Box 241956
Los Angeles, CA 90024
Tel: (310)264-0826
Fax: (310)264-4766
Email: [email protected]
Internet: http://www.madisonsfoundation.org
Pediatric Brain Tumor Foundation
302 Ridgefield Court
Asheville, NC 28806
Tel: (828)665-6891
Fax: (828)665-6894
Tel: (800)253-6530
Email: [email protected]
Internet: http://www.pbtfus.org
Cancer.Net
American Society of Clinical Oncology
2318 Mill Road Suite 800
Alexandria, VA 22314
Tel: (571)483-1780
Fax: (571)366-9537
Tel: (888)651-3038
Email: [email protected]
Internet: http://www.cancer.net/
LAM Treatment Alliance, Inc.
50 Church Street
5th Floor
Cambridge, MA 02138
Tel: (617)460-7339
Fax: (617)864-0614
Email: [email protected]
Internet: http://www.LAMTreatmentAlliance.org
Hemispherectomy Foundation
P.O. Box 1239
Aledo, TX 76008
Tel: (817)307-9880
Email: [email protected]
Internet: http://www.hemifoundation.intuitwebsites.com/welcome.html
Source: http://www.webmd.com
