Resources
Kennedy Krieger Institute
707 North Broadway
Baltimore, MD 21205
Tel: (443)923-9200
Fax: (443)923-9405
Tel: (800)873-3377
TDD: (443)923-9400
Email: [email protected]
Internet: http://www.kennedykrieger.org
National Tay-Sachs and Allied Diseases Association, Inc.
2001 Beacon Street
204
Brookline, MA 02146-4227
USA
Tel: (617)277-4463
Fax: (617)277-0134
Tel: (800)906-8723
Email: [email protected]
Internet: http://www.NTSAD.org
March of Dimes Birth Defects Foundation
1275 Mamaroneck Avenue
White Plains, NY 10605
Tel: (914)997-4488
Fax: (914)997-4763
Tel: (888)663-4637
Email: [email protected]
Internet: http://www.marchofdimes.com
United Leukodystrophy Foundation
224 N. 2nd St.
Suite 2
DeKalb, IL 60115
Tel: (815)748-3211
Tel: (800)728-5483
Email: [email protected]
Internet: http://www.ulf.org/
NIH/National Institute of Neurological Disorders and Stroke
P.O. Box 5801
Bethesda, MD 20824
Tel: (301)496-5751
Fax: (301)402-2186
Tel: (800)352-9424
TDD: (301)468-5981
Internet: http://www.ninds.nih.gov/
Canavan Research Foundation
88 Rt. 37
New Fairfield, CT 06812
Tel: (203)746-2436
Fax: (203)746-3205
Email: [email protected]
Internet: http://www.canavan.org
Canavan Research Illinois
P.O. Box 5823
Buffalo Grove, IL 60089
USA
Tel: (847)222-0736
Fax: (847)222-0736
Tel: (800)833-2194
Email: [email protected]
Internet: http://www.canavanresearch.org
Canavan Foundation
450 West End Avenue, #6A
New York, NY 10024
USA
Tel: (212)873-4640
Fax: (212)873-7892
Tel: (877)422-6282
Email: [email protected]
Internet: http://www.canavanfoundation.org
Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Internet: http://rarediseases.info.nih.gov/GARD/
Madisons Foundation
PO Box 241956
Los Angeles, CA 90024
Tel: (310)264-0826
Fax: (310)264-4766
Email: [email protected]
Internet: http://www.madisonsfoundation.org
Jacob's Cure
PO Box 52
Rye, NY 10580
Tel: (914)502-4249
Fax: (914)925-3979
Email: [email protected]
Internet: http://www.jacobscure.org
Source: http://www.webmd.com