Resources
The Arc
1825 K Street NW, Suite 1200
Washington, DC 20006
Tel: (202)534-3700
Fax: (202)534-3731
Tel: (800)433-5255
TDD: (817)277-0553
Email: [email protected]
Internet: http://www.thearc.org
Hypoparathyroidism Association, Inc.
PO Box 2258
Idaho Falls, ID 83403
Tel: (866)213-0394
Fax: (205)524-3857
Tel: (866)213-0394
Email: [email protected]. [email protected]. [email protected]. [email protected]
Internet: http://www.hypopara.org
United Leukodystrophy Foundation
224 N. 2nd St.
Suite 2
DeKalb, IL 60115
Tel: (815)748-3211
Tel: (800)728-5483
Email: [email protected]
Internet: http://www.ulf.org/
ELA - European Association Against Leukodystrophies
2, rue Mi-les-Vignes
54521
Laxou Cedex, 61024
France
Tel: 33383309334
Fax: 33383300068
Email: [email protected]
Internet: http://www.ela-asso.com
NIH/National Institute of Neurological Disorders and Stroke
P.O. Box 5801
Bethesda, MD 20824
Tel: (301)496-5751
Fax: (301)402-2186
Tel: (800)352-9424
TDD: (301)468-5981
Internet: http://www.ninds.nih.gov/
Hunter's Hope Foundation, Inc.
PO Box 643
6368 West Quaker Street
Orchard Park, NY 14127
Tel: (716)667-1200
Fax: (716)667-1212
Tel: (877)984-4673
Email: [email protected]
Internet: http://www.huntershope.org
Madisons Foundation
PO Box 241956
Los Angeles, CA 90024
Tel: (310)264-0826
Fax: (310)264-4766
Email: [email protected]
Internet: http://www.madisonsfoundation.org
Zellweger Baby Support Network
9310 Groundhog Drive
Richmond, VA 23235
Tel: (605)642-2072
Fax: (605)642-7525
Email: [email protected]
Internet: http://www.zbsn.org
Childhood Liver Disease Research and Education Network
c/o Joan M. Hines, Research Administrator
Children's Hospital Colorado
13123 E 16th Ave. B290
Aurora, CO 80045
Tel: (720)777-2598
Fax: (720)777-7351
Email: [email protected]
Internet: http://www.childrennetwork.org
Global Foundation for Peroxisomal Disorders
5147 South Harvard Avenue
Suite 181
Tulsa, OK 74135
Tel: (347)470-4373
Fax: (918)516-0227
Email: [email protected]
Internet: http://www.thegfpd.org
Council for Bile Acid Deficiency Diseases
8 Hitching Post Place
Rockville, MD 20852
Tel: (301)230-0101
Fax: (301)230-1407
Email: [email protected]
Internet: http://www.bileacid.org
Source: http://www.webmd.com
