Resources
International Long QT Syndrome Registry
Heart Research Follow-up Program
Box 653
University of Rochester Medical Center
Rochester, NY 14642-8653
Tel: (585)276-0016
Fax: (585)273-5283
Email: [email protected]
Hearing Health Foundation
363 Seventh Avenue, 10th Floor
New York, NY 10016-3904
United States
Tel: (212)257-6140
Fax: (212)257-6139
Tel: (866)454-3924
TDD: (888)435-6104
Email: [email protected]
Internet: http://hearinghealthfoundation.org/home
American Heart Association
7272 Greenville Avenue
Dallas, TX 75231
Tel: (214)784-7212
Fax: (214)784-1307
Tel: (800)242-8721
Email: [email protected]
Internet: http://www.heart.org
Sudden Arrhythmia Death Syndromes Foundation
508 E. South Temple
Suite 202
Salt Lake City, UT 84102
USA
Tel: (801)531-0937
Fax: (801)531-0945
Tel: (800)786-7723
Email: [email protected]
Internet: http://www.sads.org
NIH/National Heart, Lung and Blood Institute
P.O. Box 30105
Bethesda, MD 20892-0105
Tel: (301)592-8573
Fax: (301)251-1223
Email: [email protected]
Internet: http://www.nhlbi.nih.gov/
Cardiac Arrhythmias Research and Education Foundation, Inc. (C.A.R.E)
427 Fulton Street
P.O. Box 69
Seymour, WI 54165
USA
Fax: (920)833-7005
Tel: (800)404-9500
Email: [email protected]
Internet: http://www.longqt.org or http://www.careforhearts.org
QTsyndrome.ch
Ronnerweg 2
Nidau, 2560
Switzerland
Tel: 0041794741535
Email: [email protected]
Internet: http://www.qtsyndrome.ch/index.html
Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Internet: http://rarediseases.info.nih.gov/GARD/
Madisons Foundation
PO Box 241956
Los Angeles, CA 90024
Tel: (310)264-0826
Fax: (310)264-4766
Email: [email protected]
Internet: http://www.madisonsfoundation.org
American Academy of Audiology
11730 Plaza America Drive, Suite 300
Reston, VA 20190
Tel: (703)790-8466
Fax: (703)790-8631
Tel: (800)222-2336
Email: [email protected]
Internet: http://www.audiology.org
Fetal Hope Foundation
9786 South Holland Street
Littleton, CO 80127
USA
Tel: (303)932-0553
Tel: (877)789-4673
Email: [email protected]
Internet: http://www.fetalhope.org
Source: http://www.webmd.com