Disease: EDS

Resources

Ehlers-Danlos National Foundation
1760 Old Meadow Road, Suite 500
McLean, VA 22102
USA
Tel: (703)506-2892
Fax: (703)506-3266
Email: [email protected]
Internet: http://www.ednf.org

NIH/National Institute of Arthritis and Musculoskeletal and Skin Diseases
Information Clearinghouse
One AMS Circle
Bethesda, MD 20892-3675
USA
Tel: (301)495-4484
Fax: (301)718-6366
Tel: (877)226-4267
TDD: (301)565-2966
Email: [email protected]
Internet: http://www.niams.nih.gov/

Coalition for Heritable Disorders of Connective Tissue (CHDCT)
4301 Connecticut Avenue, NW Suite 404
Washington, DC 20008
Tel: (202)362-9599
Fax: (202)966-8553
Tel: (800)778-7171
Email: [email protected]
Internet: http://www.chdct2.org/

Ehlers-Danlos Support Group UK
PO Box 748
Borehamwood, WD6 9HU
United Kingdom
Tel: 02087365604
Email: [email protected]
Internet: http://www.ehlers-danlos.org

Ehlers Danlos Foundation of New Zealand
368 Butler Road, RD 3
Waipawa 4273
Hawkes Bay,
New Zealand
Tel: 64068747799
Fax: 64068747799
Email: [email protected]
Internet: http://www.edfnz.org.nz

EDS Today
PO Box 1382
Mays Landing, NJ 08330
USA
Tel: (609)625-3182
Email: [email protected]
Internet: http://www.edstoday.org

Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Internet: http://rarediseases.info.nih.gov/GARD/

Madisons Foundation
PO Box 241956
Los Angeles, CA 90024
Tel: (310)264-0826
Fax: (310)264-4766
Email: [email protected]
Internet: http://www.madisonsfoundation.org

European Skeletal Dysplasia Network
Institute of Genetic Medicine
Newcastle University
International Centre for Life
Central Parkway
Newcastle upon Tyne, NE1 3BZ
United Kingdom
Tel: 441612755642
Fax: 441612755082
Email: [email protected]
Internet: http://www.esdn.org

Source: http://www.webmd.com

Disorder Subdivisions

  • Ehlers Danlos syndrome, classic type
  • Ehlers Danlos syndrome, hypermobility type
  • Ehlers Danlos syndrome, vascular type
  • Ehlers Danlos syndrome, kyphoscoliotic type
  • Ehlers Danlos syndrome, arthrochalasia type
  • Ehlers Danlos syndrome, dermatosparaxis type
  • Ehlers Danlos syndrome, progeroid form
  • Ehlers Danlos syndrome, cardiac valvular form

Source: http://www.webmd.com

Define Common Diseases

Welcome to WebHealthNetwork, here you can find information, definitaions and treatement options for most common diseases, sicknesses, illnesses and medical conditions. Find what diseases you have quick and now.