Resources
Spina Bifida Association of America
4590 MacArthur Boulevard NW
Suite 250
Washington, DC 20007-4226
Tel: (202)944-3285
Fax: (202)944-3295
Tel: (800)621-3141
Email: [email protected]
Internet: http://www.sbaa.org
International Federation for Spina Bifida and Hydrocephalus
Cellebroersstraat 16
Brussels, B1000
Belgium
Tel: 32025020413
Fax: 32025021129
Email: [email protected]
Internet: http://www.ifglobal.org
Spina Bifida and Hydrocephalus Canada
Suite 647-167 av. Lombard Avenue
Winnipeg
MB
R3B 0V3
Canada
Tel: 2049253650
Fax: 2049253654
Tel: 8005659488
Email: [email protected]
Internet: http://www.sbhac.ca
Organisation For Anti-Convulsant Syndrome
131 Summertrees Road
Ellesmere Port
Cheshire, CH66 2BE
United Kingdom
Tel: 01513565949
Email: [email protected]
Internet: http://www.oacs-uk.co.uk/
Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Internet: http://rarediseases.info.nih.gov/GARD/
Source: http://www.webmd.com
