Disease: Familial Primary Pulmonary Hypertension

Resources

Scleroderma Research Foundation
220 Montgomery Street
Suite 1411
San Francisco, CA 94104
USA
Tel: (415)834-9444
Fax: (415)834-9177
Tel: (800)441-2873
Email: [email protected]
Internet: http://www.srfcure.org/home

Pulmonary Hypertension Association
801 Roeder Road, Ste 1000
Silver Spring, MD 20910
Tel: (301)565-3004
Fax: (301)565-3994
Email: [email protected]
Internet: http://www.PHAssociation.org

American Heart Association
7272 Greenville Avenue
Dallas, TX 75231
Tel: (214)784-7212
Fax: (214)784-1307
Tel: (800)242-8721
Email: [email protected]
Internet: http://www.heart.org

American Lung Association
1301 Pennsylvania Ave NW
Suite 800
Washington, DC 20004
USA
Tel: (202)785-3355
Fax: (202)452-1805
Tel: (800)586-4872
Email: [email protected]
Internet: http://www.lungusa.org

NIH/National Heart, Lung and Blood Institute
P.O. Box 30105
Bethesda, MD 20892-0105
Tel: (301)592-8573
Fax: (301)251-1223
Email: [email protected]
Internet: http://www.nhlbi.nih.gov/

PHCentral
1309 12th Avenue
San Francisco, CA 94122-2213
Tel: (415)564-0707
Fax: (415)564-0707
Email: [email protected]
Internet: http://www.phcentral.org

Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Internet: http://rarediseases.info.nih.gov/GARD/

PHA EUROPE, European Pulmonary Hypertension Association
Wilhelmstrasse 19
1120 Vienna
Austria
Tel: 43 1 402 37 25
Fax: 43 1 409 35 28
Email: [email protected]
Internet: http://www.phaeurope.org

Source: http://www.webmd.com

Disorder Subdivisions

  • idiopathic pulmonary arterial hypertension (IPAH)
  • heritable pulmonary arterial hypertension (HPAH)

Source: http://www.webmd.com

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