Resources
Caitlin Raymond International Registry
UMASS Memorial Medical Center
55 Lake Avenue
Worcester, MA 01655
Tel: (508)334-8969
Fax: (508)334-8972
Tel: (800)726-2824
Email: [email protected]
Internet: http://www.crir.org
NIH/National Heart, Lung and Blood Institute
P.O. Box 30105
Bethesda, MD 20892-0105
Tel: (301)592-8573
Fax: (301)251-1223
Email: [email protected]
Internet: http://www.nhlbi.nih.gov/
Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Internet: http://rarediseases.info.nih.gov/GARD/
Locks of Love
234 Southern Blvd.
West Palm Beach, FL 33405-3099
Tel: (561)833-7332
Fax: (561)833-7962
Tel: (888)896-1588
TDD: (561)833-7332
Email: [email protected]
Internet: http://www.locksoflove.org
Autoimmune Information Network, Inc.
PO Box 4121
Brick, NJ 08723
Fax: (732)543-7285
Email: [email protected]
European Society for Immunodeficiencies
1-3 rue de Chantepoulet
Geneva, CH 1211
Switzerland
Tel: 410229080484
Fax: 41229069140
Email: [email protected]
Internet: http://www.esid.org
Source: http://www.webmd.com
