Resources
CLIMB (Children Living with Inherited Metabolic Diseases)
Climb Building
176 Nantwich Road
Crewe, CW2 6BG
United Kingdom
Tel: 4408452412173
Fax: 4408452412174
Email: [email protected]
Internet: http://www.CLIMB.org.uk
The Arc
1825 K Street NW, Suite 1200
Washington, DC 20006
Tel: (202)534-3700
Fax: (202)534-3731
Tel: (800)433-5255
TDD: (817)277-0553
Email: [email protected]
Internet: http://www.thearc.org
Purine Research Society
5424 Beech Avenue
Bethesda, MD 20814-1730
USA
Tel: (301)530-0354
Fax: (301)564-9597
Email: [email protected]
Internet: http://www.purineresearchsociety.org
International Lesch-Nyhan Disease Association
11402 Ferndale St.
Philadelphia, PA 19116
USA
Tel: (215)677-4206
Internet: http://www.lesch-nyhan.org/
International Center for Disability Resources on the Internet
5212 Covington Bend Drive,
Suite 300
Raleigh, NC 27613
Tel: (919)349-6661
TDD: (800)328-0272
Email: [email protected]
Internet: http://www.icdri.org/
Lesch-Nyhan Syndrome Registry
New York University School of Medicine
Department of Psychiatry
550 First Avenue
Bellevue Hospital
New York, NY 10012
Tel: (212)263-6458
Fax: (212)629-9523
Email: [email protected]
Internet: http://www.lndinfo.org
NIH/National Institute of Neurological Disorders and Stroke
P.O. Box 5801
Bethesda, MD 20824
Tel: (301)496-5751
Fax: (301)402-2186
Tel: (800)352-9424
TDD: (301)468-5981
Internet: http://www.ninds.nih.gov/
Lesch-Nyhan Disease International Study Group
210 South Green Bay Road
Lake Forest, IL 60045
Tel: (847)234-3154
Fax: (847)234-3136
Internet: http://www.lesch-nyhan.org
Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Internet: http://rarediseases.info.nih.gov/GARD/
Madisons Foundation
PO Box 241956
Los Angeles, CA 90024
Tel: (310)264-0826
Fax: (310)264-4766
Email: [email protected]
Internet: http://www.madisonsfoundation.org
Source: http://www.webmd.com