Resources
VHL Family Alliance
2001 Beacon Street
Suite 208
Boston, MA 02135-7787
USA
Tel: (617)277-5667
Fax: (858)712-8712
Tel: (800)767-4845
Email: [email protected]
Internet: http://www.vhl.org
NIH/National Eye Institute
31 Center Dr
MSC 2510
Bethesda, MD 20892-2510
United States
Tel: (301)496-5248
Fax: (301)402-1065
Email: [email protected]
Internet: http://www.nei.nih.gov/
NIH/National Institute of Neurological Disorders and Stroke
P.O. Box 5801
Bethesda, MD 20824
Tel: (301)496-5751
Fax: (301)402-2186
Tel: (800)352-9424
TDD: (301)468-5981
Internet: http://www.ninds.nih.gov/
Kidney Cancer Association
1234 Sherman Avenue
Suite 203
Evanston, IL 60202-1375
USA
Tel: (847)332-1051
Fax: (847)332-2978
Tel: (800)850-9132
Email: [email protected]
Internet: http://www.curekidneycancer.org
Rare Cancer Alliance
1649 North Pacana Way
Green Valley, AZ 85614
USA
Internet: http://www.rare-cancer.org
Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Internet: http://rarediseases.info.nih.gov/GARD/
Madisons Foundation
PO Box 241956
Los Angeles, CA 90024
Tel: (310)264-0826
Fax: (310)264-4766
Email: [email protected]
Internet: http://www.madisonsfoundation.org
Cancer.Net
American Society of Clinical Oncology
2318 Mill Road Suite 800
Alexandria, VA 22314
Tel: (571)483-1780
Fax: (571)366-9537
Tel: (888)651-3038
Email: [email protected]
Internet: http://www.cancer.net/
Pheo Para Troopers
P.O. Box 2064
Kokomo, IN 46904
Email: [email protected]
Internet: http://www.pheoparatroopers.org
Source: http://www.webmd.com