Resources
National Scoliosis Foundation
5 Cabot Place
Stoughton, MA 02072
Tel: (781)341-8333
Fax: (781)341-8333
Tel: (800)673-6922
Email: [email protected]
Internet: http://www.scoliosis.org
National Marfan Foundation
22 Manhasset Avenue
Port Washington, NY 11050
Tel: (516)883-8712
Fax: (516)883-8040
Tel: (800)862-7326
Email: [email protected]
Internet: http://www.marfan.org
American Heart Association
7272 Greenville Avenue
Dallas, TX 75231
Tel: (214)784-7212
Fax: (214)784-1307
Tel: (800)242-8721
Email: [email protected]
Internet: http://www.heart.org
NIH/National Institute of Arthritis and Musculoskeletal and Skin Diseases
Information Clearinghouse
One AMS Circle
Bethesda, MD 20892-3675
USA
Tel: (301)495-4484
Fax: (301)718-6366
Tel: (877)226-4267
TDD: (301)565-2966
Email: [email protected]
Internet: http://www.niams.nih.gov/
Coalition for Heritable Disorders of Connective Tissue (CHDCT)
4301 Connecticut Avenue, NW Suite 404
Washington, DC 20008
Tel: (202)362-9599
Fax: (202)966-8553
Tel: (800)778-7171
Email: [email protected]
Internet: http://www.chdct2.org/
Canadian Marfan Association
Centre Plaza Postal Outlet
128 Queen Street South
P.O. Box 42257
Mississauga
Ontario, L5M 4Z0
Canada
Tel: 9058263223
Fax: 9058262125
Tel: 8667221722
Email: [email protected]
Internet: http://www.marfan.ca
Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Internet: http://rarediseases.info.nih.gov/GARD/
Madisons Foundation
PO Box 241956
Los Angeles, CA 90024
Tel: (310)264-0826
Fax: (310)264-4766
Email: [email protected]
Internet: http://www.madisonsfoundation.org
Cleft Lip and Palate Foundation of Smiles
2044 Michael Ave SW
Wyoming, MI 49509
Tel: (616)329-1335
Email: [email protected]
Internet: http://www.cleftsmile.org
Source: http://www.webmd.com