Resources
Amyotrophic Lateral Sclerosis Association
27001 Agoura Road
Suite 250
Calabasas Hills, CA 91301-5104
USA
Tel: (818)880-9007
Fax: (818)880-9006
Tel: (800)782-4747
TDD: (818)593-3540
Email: [email protected]
Internet: http://www.alsa.org
Families of Spinal Muscular Atrophy
925 Busse Road
Elk Grove Village, IL 60007
Tel: (847)367-7620
Tel: (800)886-1762
Email: [email protected]
Internet: http://www.fsma.org/
Motor Neurone Disease Association
PO Box 246
Northampton, NN1 2BG
United Kingdom
Tel: 01604250505
Fax: 441604624726
Email: [email protected]
Internet: http://www.mndassociation.org
Muscular Dystrophy Association
3300 East Sunrise Drive
Tucson, AZ 85718-3208
USA
Tel: (520)529-2000
Fax: (520)529-5300
Tel: (800)572-1717
Email: [email protected]
Internet: http://www.mda.org/
NIH/National Institute of Neurological Disorders and Stroke
P.O. Box 5801
Bethesda, MD 20824
Tel: (301)496-5751
Fax: (301)402-2186
Tel: (800)352-9424
TDD: (301)468-5981
Internet: http://www.ninds.nih.gov/
MND Scotland
76 Firhill Rd
Glasgow, G20 7BA
Scotland
Tel: 01419451077
Fax: 01419452578
Email: [email protected]
Internet: http://www.mndscotland.org.uk/
International Alliance of ALS/MND Associations
P.O. Box 246
Northampton, NN1 2PR
United Kingdom
Tel: 441604611821
Fax: 441604624726
Email: [email protected]
Internet: http://www.alsmndalliance.org
Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Internet: http://rarediseases.info.nih.gov/GARD/
Association for Frontotemporal Degeneration
Radnor Station Building #2, Suite 320
290 King of Prussia Road
Radnor, PA 19087
Tel: (267)514-7221
Tel: (866)507-7222
Email: [email protected]
Internet: http://www.theaftd.org
Source: http://www.webmd.com