Resources
CLIMB (Children Living with Inherited Metabolic Diseases)
Climb Building
176 Nantwich Road
Crewe, CW2 6BG
United Kingdom
Tel: 4408452412173
Fax: 4408452412174
Email: [email protected]
Internet: http://www.CLIMB.org.uk
National Urea Cycle Disorders Foundation
75 South Grand Avenue
Pasadena, CA 91105-1602
Tel: (626)578-0833
Fax: (626)578-0823
Tel: (800)386-8233
Email: [email protected]
Internet: http://www.nucdf.org
American Kidney Fund, Inc.
11921 Rockville Pike
Suite 300
Rockville, MD 20852
USA
Tel: (800)638-8299
Email: [email protected]
Internet: http://www.kidneyfund.org
National Kidney Foundation
30 East 33rd Street
New York, NY 10016
Tel: (212)889-2210
Fax: (212)689-9261
Tel: (800)622-9010
Email: [email protected]
Internet: http://www.kidney.org
ASA Kids
242 Loch Lomond Road
Bridge City, TX 77611
Tel: (409)735-4332
Fax: (409)670-6865
Email: [email protected]
Internet: http://asakids.net/home
Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Internet: http://rarediseases.info.nih.gov/GARD/
Madisons Foundation
PO Box 241956
Los Angeles, CA 90024
Tel: (310)264-0826
Fax: (310)264-4766
Email: [email protected]
Internet: http://www.madisonsfoundation.org
Urea Cycle Disorders Consortium
Children's National Medical Center
111 Michigan Avenue, NW
Washington, DC 20010
Tel: (815)333-4014
Email: [email protected]
Internet: http://rarediseasesnetwork.epi.usf.edu/ucdc/index.htm
Medical Home Portal
Dept. of Pediatrics
University of Utah
P.O. Box 581289
Salt Lake City, UT 84158
Tel: (801)587-9978
Fax: (801)581-3899
Email: [email protected]
Internet: http://www.medicalhomeportal.org
Source: http://www.webmd.com