Resources
The Arc
1825 K Street NW, Suite 1200
Washington, DC 20006
Tel: (202)534-3700
Fax: (202)534-3731
Tel: (800)433-5255
TDD: (817)277-0553
Email: [email protected]
Internet: http://www.thearc.org
FRAXA Research Foundation
10 Prince Place
Newburyport, MA 01950
USA
Tel: (978)462-1866
Fax: (978)463-9985
Email: [email protected]
Internet: http://www.fraxa.org
National Fragile X Foundation
1615 Bonanza St
Suite 202
Walnut Creek, CA 94596
USA
Tel: (925)938-9300
Fax: (925)938-9315
Tel: (800)688-8765
Email: [email protected]
Internet: http://www.fragilex.org
New York State Office for People with Developmental Disabilities
44 Holland Avenue
Albany, NY 12229
Tel: (866)946-9733
TDD: (866)933-4889
Email: [email protected]
Internet: http://www.omr.state.ny.us/ws/ws_ibr_resources.jsp
NIH/National Institute on Aging
31 Center Drive, MSC 2292
Building 31
Room 5C27
Bethesda, MD 20892
Tel: (301)496-1752
Fax: (301)496-1072
Tel: (800)222-2225
TDD: (800)222-4225
Email: [email protected]
Internet: http://www.nih.gov/nia
NIH/National Institute of Child Health and Human Development
31 Center Dr
Building 31, Room 2A32
MSC2425
Bethesda, MD 20892
Fax: (866)760-5947
Tel: (800)370-2943
TDD: (888)320-6942
Email: [email protected]
Internet: http://www.nichd.nih.gov/
New Horizons Un-Limited, Inc.
811 East Wisconsin Ave
P.O. Box 510034
Milwaukee, WI 53203
USA
Tel: (414)299-0124
Fax: (414)347-1977
Email: [email protected]
Internet: http://www.new-horizons.org
Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Internet: http://rarediseases.info.nih.gov/GARD/
Madisons Foundation
PO Box 241956
Los Angeles, CA 90024
Tel: (310)264-0826
Fax: (310)264-4766
Email: [email protected]
Internet: http://www.madisonsfoundation.org
Let Them Hear Foundation
1900 University Avenue, Suite 101
East Palo Alto, CA 94303
Tel: (650)462-3174
Fax: (650)462-3144
Email: [email protected]
Internet: http://www.letthemhear.org
Fragile X Society
Road End House
6 Stortford Road
Great Dunmow
Essex, CM6 1DA
United Kingdom
Tel: 004401371875100
Email: [email protected]
Internet: http://www.fragilex.org.uk
Medical Home Portal
Dept. of Pediatrics
University of Utah
P.O. Box 581289
Salt Lake City, UT 84158
Tel: (801)587-9978
Fax: (801)581-3899
Email: [email protected]
Internet: http://www.medicalhomeportal.org
Source: http://www.webmd.com