Resources
March of Dimes Birth Defects Foundation
1275 Mamaroneck Avenue
White Plains, NY 10605
Tel: (914)997-4488
Fax: (914)997-4763
Tel: (888)663-4637
Email: [email protected]
Internet: http://www.marchofdimes.com
FSH Society, Inc.
450 Bedford Street
Lexington, MA 02420
Tel: (781)301-6060
Email: [email protected]
Internet: http://www.fshsociety.org
Muscular Dystrophy Association
3300 East Sunrise Drive
Tucson, AZ 85718-3208
USA
Tel: (520)529-2000
Fax: (520)529-5300
Tel: (800)572-1717
Email: [email protected]
Internet: http://www.mda.org/
Muscular Dystrophy Canada
2345 Yonge Street Suite 900
Toronto
Ontario, M4P 2E5
Canada
Tel: 4164880030
Fax: 4164887523
Tel: 866MUSCLE8
Email: [email protected]
Internet: http://www.muscle.ca
Muscular Dystrophy Campaign
61 Southwark Street
London, SE1 0HL
United Kingdom
Tel: 02078034800
Email: [email protected]
Internet: http://www.muscular-dystrophy.org
NIH/National Institute of Neurological Disorders and Stroke
P.O. Box 5801
Bethesda, MD 20824
Tel: (301)496-5751
Fax: (301)402-2186
Tel: (800)352-9424
TDD: (301)468-5981
Internet: http://www.ninds.nih.gov/
Society for Muscular Dystrophy Information International
P.O. Box 7490
Bridgewater
Nova Scotia, B4V 2X6
Canada
Tel: 9026853961
Fax: 9026853962
Email: [email protected]
Internet: http://www.nsnet.org/smdi/
Muscular Dystrophy Association of New Zealand, Inc.
PO Box 16-238
Sandringham
Auckland,
New Zealand
Tel: 098150247
Fax: 092777540
Tel: 0800800337
Email: [email protected]
Internet: http://www.mda.org.nz/
Muscular Dystrophy Australia
111 Boundary Road
North Melbourne
VIC 3051
Australia
Tel: 61393209555
Fax: 61393209595
Tel: 1800656632
Email: [email protected]
Internet: http://www.mda.org.au
European Alliance of Neuromuscular Disorders Associations
MDG Malta 4
Gzira Road
Gzira, GAR 04
Malta
Tel: 0035621346688
Fax: 0035621318024
Email: [email protected]
Internet: http://www.eamda.net
Muscular Dystrophy Ireland
75 Lucan Road
Chapelized
Dublin 20
Ireland
Tel: 016236414
Fax: 016208663
Email: [email protected]
Internet: http://www.mdi.ie/
Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Internet: http://rarediseases.info.nih.gov/GARD/
Madisons Foundation
PO Box 241956
Los Angeles, CA 90024
Tel: (310)264-0826
Fax: (310)264-4766
Email: [email protected]
Internet: http://www.madisonsfoundation.org
Spina Bifida Hydrocephalus Queensland
PO Box 8022
Woolloongabba
Queensland, 4102
Australia
Tel: (07) 3844 4600
Fax: (07) 3844 4601
Email: [email protected]
Internet: http://www.spinabifida.org
Child Neurology Foundation
201 Chicago Ave, #200
Minneapolis, MN 55415
USA
Tel: (952)641-6100
Fax: (952)881-6276
Tel: (877)263-5430
Email: [email protected]
Internet: http://www.childneurologyfoundation.org
Source: http://www.webmd.com